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MAKING CONNECTIONS

DELIVERING

RESULTS

 

Saskatchewan Epilepsy Inc. is a non-profit charitable organization run by an eleven member Board. Saskatchewan Epilepsy Inc. does not receive core funding and is not subsidized by any government.  The organization relies strictly on volunteerism, their own fundraising and any incoming donations.  A one time inheritance helps Saskatchewan Epilepsy Inc. exist for today.  An office does not exist but a telephone line is always open to calls.  Messages, emails or faxes are always responded to.  The Board will reach out and speak to those wishing guidance or information on a one to one basis.  Medical advice can only be prescribed by doctors and pharmacists. Talk to your pharmacists about medicine side effects and when to take medication. Contact us, we are always willing to talk.

 

OUR

SERVICES

WHO WE ARE

Saskatchewan Epilepsy is a Canadian registered charity, 861644987RR0001, established in 2005, providing programs that educate and assist people to overcome barriers. We continue to increase membership, and to help people with epilepsy through support group meetings, scholarships, information and other assistance. Calls continue to come in with inquiries about epilepsy. Support group meetings are held monthly.

Saskatchewan Epilepsy Inc. can be reached at 306-359-0905, Facebook @ Saskatchewan  Epilepsy Inc., or you can email us at skepilepsy@sasktel.net.

HISTORY

In 1982 Mrs. Sunny Torgunrud, who had a son with epilepsy, and a friend with epilepsy decided to open an organization for those afflicted with the epilepsy and their families.  Presentations were provided, support meetings held and resources for members who needed assistance.  Sunny completed a Bachelor in Social Work  and Certificate in Human Justice.  June 26, 1991 Sunny received the National Canada Volunteer Award presented in Ottawa from the Minister of National Health and Welfare of Canada. 

 

CANADA VOLUNTEER MEDAL - “The Canada Volunteer Medal was established by Health and Welfare Canada to recognize and encourage those Canadians who have made outstanding voluntary contributions  towards improving the health and social well-being of fellow citizens. The Canada Volunteer Award presented annually by the Minister on behalf of all Canadians  It is hoped that Award winners will be an inspiration to other Canadians.”

DR. FELIX VELOSO, M.D., F.R.C.P.(c), F.A.A.N.

In 2005, Dr. Veloso wrote a letter to the CRA recognizing an important use for Saskatchewan Epilepsy Inc. for the purposes of those afflicted with the condition. His letter of referral helped Saskatchewan Epilepsy Inc. become a registered charity.  Dr. Veloso is recognized at the annual golf tournament and member of the Board of Directors.

SASKATCHEWAN EPILEPSY INC.

In 2005 Saskatchewan Epilepsy Inc. came to be, a new charity name but with the same ideas.  The same  services exist but with more choices.  The Bruce Hammond Fund still exists today, supporting social networking, support group meetings and  special group functions.  A Sampson Memorial Fund was created to continue alongside the Bruce Hammond Fund.  We are a grassroots organization aimed to help our people.

 

 Xmas, Rory Allen, 2018

OUR WORK

THE BRUCE HAMMOND FUND

The Bruce Hammond Fund (BHF) is in memory of a member who passed away in a seizure. Bruce's family donated money to Saskatchewan Epilepsy Inc. so members could go out and socialize as a group. Bowling, coffee outings, summer barbecues and Christmas events are just to name a few activities that members enjoy.  The Bruce Hammond Fund (BHF) is recognized annually at Saskatchewan Epilepsy's annual golf tournament with signage.

 

THE SAMPSON MEMORIAL SCHOLARSHIP

The Sampson Memorial Scholarship is dedicated to post secondary students of immediate family who overcome barriers coping with the challenges of epilepsy. The scholarship is dedicated to the memory of Paul Sampson and late wife Helen, who would not allow epilepsy to prevent them from achieving goals. A $1,000.00 bursary was established in honor of Mr. and Mrs. Sampson.  The Sampson Memorial Scholarship is recognized annually at Saskatchewan Epilepsy's annual golf tournament with signage.

Successful candidates must meet all of the following eligibility criteria:

  • Must have Epilepsy or in the immediate family, a doctor's letter must be provided

  • Must be a permanent resident of southern Saskatchewan.

  • Enrolled in or accepted for full-time or part time post secondary studies in a College or University, accredited professional or apprenticeship training institution

Candidates must demonstrate their determination and resilience in overcoming barriers and challenges related to epilepsy. Academic strength, educational goals, communication skills, and involvement in raising awareness about epilepsy will be considered.

POST OPERATION NEUROLOGICAL COVERAGE

Saskatchewan Epilepsy Inc. will help cover travel costs of their members who qualify for an epilepsy operation. Saskatchewan Epilepsy Inc. will cover costs to a maximum of $1,000.00, paid after the operation  is completed.  A letter from your neurosurgeon indicating such a procedure occurred is required.  Application form is attached.

SEIZURE RESPONSE DOG STARTUP

Saskatchewan Epilepsy Inc. will help cover travel costs of their members who qualify for an epilepsy seizure dog. Saskatchewan Epilepsy Inc. will cover costs to a maximum of $1,000.00, paid after the obtaining the seizure dog.  Costs can cover dog leashes, harnesses, clothing and travel away from to obtain the seizure dog. A letter from your neurosurgeon indicating such a seizure dog is required.  Application form is attached.

 

Epilepsy is a condition in which a person has recurrent seizures. A seizure is defined as an abnormal, disorderly discharging of the brain's nerve cells, resulting in a temporary disturbance of motor, sensory, or mental function.

There are many types of seizures, depending primarily on what part of the brain is involved.

Discuss options with your doctor or neurologist for treatment of epilepsy seizures.  Follow their advice, especially if you are on prescribed medications, generally anticonvulsants.

The VNS, Vagus Nerve Stimulator, is a generator, implanted under the skin below the patient’s left chest under the clavicle. Lead wires from the generator are wired up to the patient’s neck and wrapped around the left vagus nerve at the carotid sheath to connect electrodes to the generator. It delivers electrical impulses to the vagus nerve at regular intervals. VNS is an adjunctive treatment for certain types of intractable epilepsy.

Another option is epilepsy surgery.  Your doctor would discuss your options and possibly of an operation.  A neurosurgeon becomes involved and will provide epilepsy tests to see if you are a likely candidate for surgery.

Neurosurgeons can surgically remove the part of your brain where seizures happen, a brain lesion, a brain lobe, or a portion of a brain lobe. The most common type of surgery is a temporal lobectomy

Healthy people may have seizures under certain circumstances. If the seizures have a known cause, the condition is referred to as secondary or symptomatic epilepsy.

 

OUR CLIENTS

Saskatchewan Epilepsy Inc provide their clients with education and programs they require to overcome barriers, living with epilepsy and improve their quality of life.

 

Saskatchewan Epilepsy Inc provide support and counselling to families coping with the condition.

 

People with epilepsy often express feelings of isolation. Often, they don’t know many other people with epilepsy. Saskatchewan Epilepsy Inc provide individuals with a shared sense of support and connection. People can express their  concerns and learn from others who are going through similar issues. Come share your thoughts on life with epilepsy,  offer and receive support while enjoying great company!

 

"Saskatchewan Epilepsy Inc. encourage the members to talk about their seizures.  When talking about your seizures you are empowering the people that you are talking to. By communicating  to society  about epilepsy we will get rid of the stigmatism.  Explain how people can help you when you are having a seizure.  You might be pleasently surprised how  many people are eager to help you." - Dale Oram

Remember you are a person first with epilepsy second

 

Magnetic Resonance Imaging (MRI) scan ; A radiologic imaging technique that uses magnets and a computer to produce pictures of soft tissue in the brain

Computerised Axial Tomography (CT or CAT scan) ; Scans used to produce images of the brain created by a computer with data from multiple x-rays. Images from a CT scan are less detailed than MRI scans.

Electroencephalography (EEG) : recording electrical activities of the brain.  Recorded from multiple electrodes placed on the scalp. EEG is most often used to diagnose brain disorders, but has decreased with the imaging techniques such as MRI and CT.

 

OUR

TEAM 

 

BOARD OF DIRECTORS: ABOVE : Dr Felix Veloso - Neurologist; MIDDLE ROW: Steve McInnis - Advocacy; Mary Hoffart - Paralegal; Dale Oram - Advocacy; Paula Green - Administration; Carla Harris - Marketing; Jack R. Hoffart - Lawyer;  FRONT ROW: Darlene Achter - Bus Admin; Theresa Law - RN; MISSING: Mona Snyder - Advocacy;

VOLUNTEERS (back): Darrel Green; Dale Law

 

CAN YOU TELL WHO HAS EPILEPSY FROM THE PICTURES?

 
 

 

Read Dr. Veloso's books; "Naturally Proven Non-Pharmaceutical Stoke Avoidenc Strategies" and "Naturally Evidence-Based Strategies To Enrich Cognition". 

 

FUN

FACTS

Well known people with epilepsy include: Agatha Christie, Alexander the Great, Alexander Kovalev, Bud Abbott, Charles Dickens, Danny Glover, Derek Morris, Edgar Allan Poe, Elton John, Julius Caesar, Martin Luther, Michelangelo, Neil Young, Prince, Richard Burton, Sir Walter Scott, Theodore Roosevelt, Thomas Edison, Vincent Van Gogh

 

 

GET IN

TOUCH

We can't wait to hear from you

Saskatchewan Epilepsy Inc.

Box 33016

Regina, Sk

S4T 7X2

skepilepsy@sasktel.net

Ph 1-306-359-0905 (Regina)

Ph 1-306-773-1544 (Swift Current)

Fax 1-306-359-6892